Sunday, April 29, 2012
Nice weekend and rambling thoughts
What a lovely weekend we just had. The weather was perfect - mid-70s. We slept with the windows open. We got lots done around here. Brad began assembling the cabinets for the kitchen. They are very nice. We still need to find drawer pulls (Have you seen what they cost? It's jut insane)and pick out some granite for the countertops. There is still lots to do. Brad pretty much has the wiring done and all of the overhead lights installed. He put in the new "on demand" water heater. I've been working in the "new" spare bedroom. I had previously painted two of the walls a very pale gray (can't recall if I've already talked about this so forgive me if I have) and the window frames are white. I've been working on taping and mudding the drywall and I'm almost done. We moved the large metal storage cabinets out of the spare bedroom so we can spray he texture on the remaining two walls and then paint them. Once that's done Brad is going to put a wood casing around the closet door and we'll start working on he floor. It's gonna be epoxy with a metal flake in it. Kinda utilitarian but nice. We'll find a colorful rug to put over it. We found some nice honey comb shades in a darker gray color. The contrast will look great. I'll add a splash of color with the bed coverings. We'll have a little office in there too and a small living room in the front of that apartment to entertain our friends.
In the kitchen we will start sealing wood for the ceiling. It's gonna be pretty much like what we did in our bedroom suite. I just love it.
I saw Dr. Mehta Friday. He told me how to get samples of my biopsies. We talked about the possibility of my current cancer transforming into something more aggressive. That's certainly possible. I also worry about my Hodgkin lymphoma relapsing. That's certainly possible too. It's probably pretty reasonable to be feeling, well stressed right now. I am looking forward to another opinion. As I have said before, I just want to be sure the diagnosis is correct. I want to talk to some other doctors and see what they think I should do to treat this new cancer. I've read here is a chance to cure it with an early diagnosis such as the one I have. I want to persue the possibility rather than just going for a long remission with rituxan. I'm afraid if I have, for example a 7 year remission with rituxan, and then it transforms and becomes aggressive I may be too old to be considered for an ASCT.
I am dreading the surgery to install the port-a-cath which is coming up on Thursday and then on to my first rituxan treatment the very next day. To say I have some anxiety would be an understatement. I am hoping that incredible nurse Phoebe will be there to put in my IV for the surgery. I'm also hoping the anesthesiologist uses vercid again. I do NOT want another alien abduction memory! I'm sure it's an outpatient procedure so I will get to go back to our comfortable home when it's over. Friday is going to be a LONG day. It will probably take 6 or more hours for the rituxan treatment. They really worry about allergic reactions, particularly the first time. I've read they will give me a hefty dose of IV Benadryl which will likely knock me out for most of it.
I've been thinking of getting numbered tattoos for all of my surgeries. Where to put the number for the tonsillectomy is a litte problematic. Oh forget it, it was just a bad idea. :)
We have several alpacas due to deliver. Sure as hell they will all wait until I'm in surgery or having my treatment on Friday to deliver. The following females are due: Sehiya bred to Mr. Cash, Lady Hawke bred to Mr. Cash, Ana bred to Snow Hawke, Sweetie bred to Mr. Cash, Blueberry bred to Mr. Cash, Roen bred to Mr. Cash, Delight bred to Mr. Cash
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Wow. So much to digest. Would you like me to come with you when you get your port inserted? I just completed a CE on chemo drugs and rituxan was one of them. I have faith that you'll do well with the treatment. The good news is that IF you do develop a side effect, it will occur relatively quickly. Talk to your doctor if you are taking any antihypertensive medications. The doc may advise to withhold the BP med prior to treatment. I am praying for you and I am here for you. I'll give you a call soon.
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